{"id":1,"date":"2023-03-03T12:57:30","date_gmt":"2023-03-03T12:57:30","guid":{"rendered":"http:\/\/szansa.katowice.pl\/Blog\/?p=1"},"modified":"2023-09-17T17:15:17","modified_gmt":"2023-09-17T17:15:17","slug":"21-melodii","status":"publish","type":"post","link":"https:\/\/szansa.katowice.pl\/Blog\/wpisy\/21-melodii\/","title":{"rendered":"Zesp\u00f3\u0142 Downa &#8211; 21 melodii"},"content":{"rendered":"\n<p class=\"has-text-align-center has-large-font-size wp-block-paragraph\"><strong>Zesp\u00f3\u0142 Downa &#8211; 21 melodii<\/strong><\/p>\n\n\n\n<p class=\"has-text-align-justify wp-block-paragraph\">Zesp\u00f3\u0142 Downa jest w centrum naszego \u017cycia i z pewno\u015bci\u0105 chcia\u0142by gra\u0107 pierwsze skrzypce. Jednak dopiero to wszystko, co dzieje si\u0119 wok\u00f3\u0142 niego, sprawia, \u017ce (zazwyczaj \u263a) funkcjonujemy jak dobrze zgrana orkiestra. Rodzina, znajomi, szko\u0142a, zespo\u0142y terapeutyczne, wsparcie medyczne to poszczeg\u00f3lne sekcje w tej specjalnej orkiestrze. Oczywi\u015bcie niezb\u0119dny jest r\u00f3wnie\u017c dyrygent, kt\u00f3ry tym wszystkim p\u0142ynnie pokieruje. Teraz Was jako widowni\u0119 chcieliby\u015bmy zaprosi\u0107 do naszego \u015bwiata &#8211; \u015bwiata dzieci i ich bliskich, kt\u00f3rym Zesp\u00f3\u0142 Downa nie jest obcy. Pragniemy przybli\u017cy\u0107 Wam nasz\u0105 codzienno\u015b\u0107. Nie tylko to z czym si\u0119 borykamy, ale te\u017c jakie odnosimy sukcesy. Jak czasem upadamy, ale r\u00f3wnie\u017c jak na nowo powstajemy. Usi\u0105d\u017a i ws\u0142uchaj si\u0119 w nasze melodie.<\/p>\n\n\n\n<p class=\"has-text-align-justify wp-block-paragraph\">Stworzyli\u015bmy fikcyjne postacie, kt\u00f3re b\u0119d\u0105 przewodnikami w tej drodze. Dlaczego fikcyjne? By pokaza\u0107 szersz\u0105 perspektyw\u0119 zagadnie\u0144 dla r\u00f3\u017cnych grup wiekowych. Najm\u0142odsza w wieku przedszkolnym to Zuzanna D\u0105browska (zwana cz\u0119sto Zuzk\u0105, rocznik 2020), nast\u0119pnie w wieku szkolnym Zofia Drobiszy\u0144ska (zwana cz\u0119sto Zo\u015bk\u0105, rocznik 2010) oraz doros\u0142y\u00a0Zygmunt Dola\u0144ski (zwany Zygusiem, albo Zigim, rocznik 2000).<br>Wszyscy urodzili si\u0119 z <strong>trisomi\u0105 21 chromosomu<\/strong>. Jest to wada genetyczna*, ale my lubimy m\u00f3wi\u0107, \u017ce urodzili si\u0119 z odmienno\u015bci\u0105 genetyczn\u0105. Zapewne podejrzewacie jak wygl\u0105daj\u0105, bo maj\u0105 charakterystyczne <strong>sp\u0142aszczony profil twarzy, lekko sko\u015bne oczy oraz kr\u00f3tki grzbiet nosa<\/strong>*. Maj\u0105 jednak r\u00f3wnie\u017c niesamowicie szeroko otwarte serca i empati\u0119 wystrzelon\u0105 do nieba oraz rosn\u0105c\u0105 wraz z ich wiekiem \u015bwiadomo\u015b\u0107 swojej odmienno\u015bci, kt\u00f3ra potrafi czasem zniszczy\u0107 najwi\u0119ksz\u0105 dzieci\u0119ca rado\u015b\u0107. <strong>Zesp\u00f3\u0142 Downa nie jest chorob\u0105<\/strong>, nie da si\u0119 go wyleczy\u0107. Panaceum natomiast, kt\u00f3re zawsze przynosi wspania\u0142e efekty jest mi\u0142o\u015b\u0107 i akceptacja.<\/p>\n\n\n\n<p class=\"has-small-font-size wp-block-paragraph\">Zapraszamy do przegl\u0105dania codziennych ciekawostek z \u017cycia Stowarzyszenia w\u0142a\u015bnie <strong><a href=\"https:\/\/www.facebook.com\/StowarzyszenieSzansaKatowice\/\" class=\"ek-link\">tutaj<\/a><\/strong>.<\/p>\n\n\n\n<p class=\"has-small-font-size wp-block-paragraph\">Zobacz r\u00f3wnie\u017c inne nasze wpisy <strong><a href=\"https:\/\/szansa.katowice.pl\/\" class=\"ek-link\">tutaj<\/a><\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Zesp\u00f3\u0142 Downa &#8211; 21 melodii Zesp\u00f3\u0142 Downa jest w centrum naszego \u017cycia i z pewno\u015bci\u0105 chcia\u0142by gra\u0107 pierwsze skrzypce. Jednak dopiero to wszystko, co dzieje si\u0119 wok\u00f3\u0142 niego, sprawia, \u017ce (zazwyczaj \u263a) funkcjonujemy jak dobrze zgrana orkiestra. Rodzina, znajomi, szko\u0142a, zespo\u0142y terapeutyczne, wsparcie medyczne to poszczeg\u00f3lne sekcje w tej specjalnej orkiestrze. Oczywi\u015bcie niezb\u0119dny jest r\u00f3wnie\u017c &hellip; <a href=\"https:\/\/szansa.katowice.pl\/Blog\/wpisy\/21-melodii\/\" class=\"more-link\">Czytaj dalej <span class=\"screen-reader-text\">Zesp\u00f3\u0142 Downa &#8211; 21 melodii<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":85,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_editorskit_title_hidden":true,"_editorskit_reading_time":0,"_editorskit_is_block_options_detached":false,"_editorskit_block_options_position":"{}","footnotes":""},"categories":[1],"tags":[],"class_list":["post-1","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-wpisy"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Zesp\u00f3\u0142 Downa - 21 melodii -<\/title>\n<meta name=\"description\" content=\"Zesp\u00f3\u0142 Downa. 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